About Us

About Huntington's Disease Society of America

The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. The Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. The Society is comprised of 39 local chapters and affiliates across the country with its headquarters in New York City, supports 21 HDSA Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling; and 140 support groups. Contact HDSA for more information, or to support the work it does.

home page  

www.hdsa.org

email

hdsainfo@hdsa.org

phone

800-345-HDSA (4372)



About Lotsa Helping Hands

Lotsa Helping Hands was created to support family caregivers and volunteers by empowering their circles of community who are eager to help those in need.

Our mission is to provide the communication resources facilitating a world where caregivers feel empowered to ask for help, and in so doing, improve their own health and quality-of-life; volunteers can become part of the solution when family, friends, neighbors or colleagues are in need of help, and community becomes a recognized way to find meaning in both giving and receiving.

Our Story

We created Lotsa Helping Hands after witnessing four years of awe-inspiring community support and response to a family member’s serious medical crisis. Seeing how earnestly friends wanted to help, and juggling the difficulty of organizing their assistance, we designed Lotsa Helping Hands with the understanding of how to bring together a variety of social circles and what a resulting community like this would need. Lotsa Helping Hands is easy to use and requires no training for either the Coordinator who creates the community or the members who participate.

Our Commitment to Philanthropy

Because Lotsa Helping Hands was inspired by the outpouring of support during our own caregiving experiences, we have a strong commitment to giving back, ourselves. We support the nonprofit sector and align with national organizations who offer our service to their members and constituents. We donate pro bono expertise and financial resources to the nonprofit organizations we serve.

What to Do Next

Choose a coordination service that might be right for you and your circles of community. Learn more about how it works or create your own community today.

Share your story on our Facebook Page

If you are a member of the media, please visit our media room.

A service of

Huntington's Disease Society of America